Parent's POV

Fitting In while Standing Out

When I was in grade one, I wore costumes to school. One day I'd be a ballerina, the next, Michael Jackson. I LOVED playing dressing up. I don't remember the last day I wore a costume to class, but it happened, as expected. Somewhere between kindergarten and high school, I learned that people don't do… Continue reading Fitting In while Standing Out

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Resources

How do glasses work?

As many parents of newly diagnosed children do, we're doing our best to educate ourselves on Ruby's aniridia diagnosis. During this process, we stumble upon some very interesting resources. I've been pinning some and saving others, but I think a better system is keeping them where they can be shared with others, like say, right here.… Continue reading How do glasses work?

Parent's POV, Ruby Update

Early Days

Since our first post, we've been back to Sick Kids Hospital a few more times monitoring the progress with the meds and staying on top of the pressure in her eyes. At our first check up, the first words out of our doctor's mouth were "Wow - what a difference!" The meds are doing their job… Continue reading Early Days