Fitting In while Standing Out

When I was in grade one, I wore costumes to school. One day I'd be a ballerina, the next, Michael Jackson. I LOVED playing dressing up. I don't remember the last day I wore a costume to class, but it happened, as expected. Somewhere between kindergarten and high school, I learned that people don't do… Continue reading Fitting In while Standing Out

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Iris

Some of you may know me as a Goo Goo Dolls fan.  Love 'em or hate 'em, we've all heard their song Iris.  In case you were living under a rock close to Y2K, here's a link to the song. Ever since we found out that Ruby was born without irises and that they would not… Continue reading Iris

Our Normal

Normal is a word I don't really like to use, but it's hard to avoid. What is normal, anyway? The best definition I've heard is "a setting on your washing machine". Normal is an agreed upon narrative that we often aspire to, but that doesn't really exist. It makes us feel safe -- like we're on the right… Continue reading Our Normal

Our Village

Our village is full of the coolest, most supportive individuals.  We have the best parents, sisters, aunts, uncles, cousins and grandparents.  We cherish our friends near and far, those we see every week and those we don't talk to or see for months.  You all hold a special place in our hearts.  Roo, Sar and I… Continue reading Our Village

Can She?

When we talk about Ruby's Aniridia, there are times the conversation drifts to what Ruby can and can't do -- and, most of those times, the focus seems to drift to can't. The same seems to be true when I think about other kids with disabilities -- the focus staying on the DISability, not the ability. The way Ruby's… Continue reading Can She?