When I was in grade one, I wore costumes to school. One day I'd be a ballerina, the next, Michael Jackson. I LOVED playing dressing up. I don't remember the last day I wore a costume to class, but it happened, as expected. Somewhere between kindergarten and high school, I learned that people don't do… Continue reading Fitting In while Standing Out
Some of you may know me as a Goo Goo Dolls fan. Love 'em or hate 'em, we've all heard their song Iris. In case you were living under a rock close to Y2K, here's a link to the song. Ever since we found out that Ruby was born without irises and that they would not… Continue reading Iris
Normal is a word I don't really like to use, but it's hard to avoid. What is normal, anyway? The best definition I've heard is "a setting on your washing machine". Normal is an agreed upon narrative that we often aspire to, but that doesn't really exist. It makes us feel safe -- like we're on the right… Continue reading Our Normal
Today was the first day I was asked that question -- "Oh! Those glasses are so cute!!! Are they real?" This frequently asked question upsets a lot of parents of kids with glasses. Why would we put glasses on a baby who doesn't need them? I think the underlying frustration lies in the fact that some… Continue reading Are Those Glasses Real?
Our village is full of the coolest, most supportive individuals. We have the best parents, sisters, aunts, uncles, cousins and grandparents. We cherish our friends near and far, those we see every week and those we don't talk to or see for months. You all hold a special place in our hearts. Roo, Sar and I… Continue reading Our Village
It took about four days after goniotomy surgery for Ruby to get back to being her usual happy-go-lucky self. She slept most of day one, napped and fussed a lot of day two, and started cracking a few "I'm still not feeling great but can't help myself" smiles on day three. By day four she… Continue reading Step by Step
When we talk about Ruby's Aniridia, there are times the conversation drifts to what Ruby can and can't do -- and, most of those times, the focus seems to drift to can't. The same seems to be true when I think about other kids with disabilities -- the focus staying on the DISability, not the ability. The way Ruby's… Continue reading Can She?